Citation
Savard, L., Lodestone, Z., Lagro, J., Shor, M., Medeiros, S., Lefluer, M., Houser, M., Coderre, E.,Lewis, L., Hirz, D., Bumpas, M., Prelock, P. (2024) Co-Creation of Onboarding Tools for Participatory Autism Research. Presented at the UVM Center for Disability and Community Inclusion Symposium, November 14 2024. Burlington, VT.
Summary
Resources include:
- Survey template of access needs
- Infographic for autism-friendly language
- Compensation guidelines
- Meeting slides for inclusive norm
Autism research should be done in collaboration with people with lived experience. Researchers and community partners need training in how to work together.
Participatory Action approach ● Team included people from the autism community ● Reviewed existing research training ● Co-created new content through: ○ Multi-stakeholder workgroups ○ Weekly 1:1 work meetings ○ Monthly planning team meetings
Community partners need to understand the research process and constraints. Working together requires a better understanding of the real life impact of autism in order to create a safe, accessible and effective research team.
Our team developed collaborative skills through the process of creating these resources. A next step is to assess if the training tools we created lead to more accessible and productive autism research partnerships.
Savard, L., Lodestone, Z., Lagro, J., Shor, M., Medeiros, S., Lefluer, M., Houser, M., Coderre, E.,
Lewis, L., Hirz, D., Bumpas, M., Prelock, P. (2024) Co-Creation of Onboarding Tools for
Participatory Autism Research. Presented at the UVM Center for Disability and Community
Inclusion Symposium, Burlington, VT.
