{"id":286,"date":"2023-01-04T14:06:30","date_gmt":"2023-01-04T14:06:30","guid":{"rendered":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/?page_id=286"},"modified":"2023-03-15T17:51:24","modified_gmt":"2023-03-15T17:51:24","slug":"agenda","status":"publish","type":"page","link":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/agenda\/","title":{"rendered":"Agenda"},"content":{"rendered":"<p dir=\"ltr\"><div class=\"su-spoiler su-spoiler-style-fancy su-spoiler-icon-plus su-spoiler-closed\" data-scroll-offset=\"0\" data-anchor-in-url=\"no\"><div class=\"su-spoiler-title\" tabindex=\"0\" role=\"button\"><span class=\"su-spoiler-icon\"><\/span>AGENDA March meeting<\/div><div class=\"su-spoiler-content su-u-clearfix su-u-trim\">\n<h2 dir=\"ltr\">AGENDA March: \u00a0Priorities for Research Outcomes<\/h2>\n<h2 dir=\"ltr\">Welcome (Estimated 15 minutes)<\/h2>\n<ul>\n<li dir=\"ltr\">\n<p dir=\"ltr\" role=\"presentation\"><strong>Housekeeping<\/strong><\/p>\n<\/li>\n<li dir=\"ltr\"><strong>Review of healthcare transition research<\/strong><\/li>\n<\/ul>\n<h2 dir=\"ltr\">Let\u2019s Get to Know Each Other (Estimated 10 minutes)<\/h2>\n<ul>\n<li dir=\"ltr\">\n<h4 dir=\"ltr\" role=\"presentation\">Introductions are welcomed, but optional.<\/h4>\n<\/li>\n<li dir=\"ltr\">\n<h4 dir=\"ltr\" role=\"presentation\">Ideas:<\/h4>\n<ul>\n<li dir=\"ltr\">\n<p dir=\"ltr\" role=\"presentation\">Please call me _______. My pronouns are _____.<\/p>\n<\/li>\n<li dir=\"ltr\">\n<p dir=\"ltr\" role=\"presentation\">The reason I am here today is _______________.<\/p>\n<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<h2 dir=\"ltr\">Part 1: Healthcare Accessibility (Estimated 20 minutes)<\/h2>\n<h3><span style=\"font-weight: 400\">During the first focus group, we talked about what can make healthcare access more comfortable and helpful to Autistic youth and young adults.<\/span><\/h3>\n<h3><span style=\"font-weight: 400\">You told us:<\/span><\/h3>\n<ul>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Accommodations should be available<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Training is needed for providers\u00a0<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Knowing what to expect is important<\/span><\/h3>\n<\/li>\n<\/ul>\n<h3><\/h3>\n<h3><span style=\"color: #008000\">If we put the right ACCOMMODATIONS in place,\u00a0<\/span><\/h3>\n<ul>\n<li>\n<h3><span style=\"color: #008000\">how would we know they are working?<\/span><\/h3>\n<\/li>\n<li>\n<h3><span style=\"color: #008000\">how would it make a difference in your experience?\u00a0<\/span><\/h3>\n<\/li>\n<\/ul>\n<h3><\/h3>\n<p>&nbsp;<\/p>\n<h3><span style=\"color: #008000\">If we put the right TRAINING in place,\u00a0<\/span><\/h3>\n<ul>\n<li>\n<h3><span style=\"color: #008000\">how would we know it\u2019s working?<\/span><\/h3>\n<\/li>\n<\/ul>\n<ul>\n<li>\n<h3><span style=\"color: #008000\">how would it make a difference in your experience?<\/span><\/h3>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none\"><\/li>\n<\/ul>\n<h3><\/h3>\n<h3><\/h3>\n<p>&nbsp;<\/p>\n<h3><span style=\"color: #008000\">If people KNOW WHAT TO EXPECT,\u00a0<\/span><\/h3>\n<ul>\n<li>\n<h3><span style=\"color: #008000\">how would we know it\u2019s working?<\/span><\/h3>\n<\/li>\n<\/ul>\n<ul>\n<li>\n<h3><span style=\"color: #008000\">how would it make a difference in your experience?<\/span><\/h3>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none\">\n<ul>\n<li style=\"list-style-type: none\"><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h2>Part 2: Transfer of care (Estimated 15 min)<\/h2>\n<h3><span style=\"font-weight: 400\">You told us that transition support would be helpful. Here are some examples you shared with us:<\/span><\/h3>\n<ul>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Having a choice of transferring records\/disclosing autism diagnosis<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Transferring care to a family practice avoids the need for a change in provider<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Collaboration between school, social service agencies, insurance company and healthcare providers\u00a0<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Shared healthcare decision between youth and parent\/caregivers<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Having a transition manager or care coordinator<\/span><\/h3>\n<\/li>\n<\/ul>\n<h3><\/h3>\n<h3><span style=\"color: #008000\"><b>If we put the right TRANSITION SUPPORT in place,\u00a0<\/b><\/span><\/h3>\n<ul>\n<li>\n<h3><span style=\"color: #008000\"><b>how would we know it\u2019s working?<\/b><\/span><\/h3>\n<\/li>\n<\/ul>\n<ul>\n<li>\n<h3><span style=\"color: #008000\"><b>how would it make a difference in your experience?<\/b><\/span><\/h3>\n<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h2>Part 3: Mental Health\u00a0(Estimated 15 min)<\/h2>\n<h3><span style=\"font-weight: 400\">During the first focus groups, you told us that mental health support was as important as physical healthcare. Some of the things you said would be helpful are:<\/span><\/h3>\n<ul>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Resources to find autism-informed mental health providers and resources<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Opportunities to connect between youth and young adults with similar experiences<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">The availability of providers trained and knowledgeable in neurodiversity across different needs and areas of practice.<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Eliminating insurance barriers to getting therapy and other services.<\/span><\/h3>\n<\/li>\n<\/ul>\n<h3><span style=\"color: #008000\"><b>If we put the right MENTAL HEALTH support in place,\u00a0<\/b><\/span><\/h3>\n<ul>\n<li>\n<h3><span style=\"color: #008000\"><b>how would we know it\u2019s working?<\/b><\/span><\/h3>\n<\/li>\n<\/ul>\n<ul>\n<li>\n<h3><span style=\"color: #008000\"><b>how would it make a difference in your life?<\/b><\/span><\/h3>\n<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h2>Part 4: Relationships, Dating and Sexual Health\u00a0(Estimated 15 min)<\/h2>\n<h3><span style=\"font-weight: 400\">During the first focus groups, you told us that some specific support would be helpful. For example:<\/span><\/h3>\n<ul>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Having more opportunities for dating and meeting people.<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Access to communities of people with things in common.<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Having information available on diverse ways that sexuality is experienced.<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Have healthcare providers give sexual health information.<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Access to therapies like counseling or speech language therapy around communication and relationships.<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Support in identifying and dealing with abuse and unhealthy relationships.<\/span><\/h3>\n<\/li>\n<\/ul>\n<h3><\/h3>\n<h3><span style=\"color: #008000\"><b>If we put the right RELATIONSHIP and SEXUAL HEALTH support in place,\u00a0<\/b><\/span><\/h3>\n<ul>\n<li>\n<h3><span style=\"color: #008000\"><b>how would we know it\u2019s working?<\/b><\/span><\/h3>\n<\/li>\n<\/ul>\n<ul>\n<li>\n<h3><span style=\"color: #008000\"><b>how would it make a difference in your experience?<\/b><\/span><\/h3>\n<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h2>Part 5. Adult services to support an active and engaged adult life (Estimated 15 min)<\/h2>\n<h3><span style=\"font-weight: 400\">You told us that some specific support would be helpful. For example:<\/span><\/h3>\n<ul>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Vocational supports to collaborate with other providers during the transition<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Access to day-time activities opportunities for young Autistic adults<\/span><\/h3>\n<\/li>\n<li style=\"font-weight: 400\">\n<h3><span style=\"font-weight: 400\">Support for broad access to post-secondary education<\/span><span style=\"font-weight: 400\">.<\/span><\/h3>\n<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h3><span style=\"color: #008000\"><b>If we put the right support in place for Autistics to have an ACTIVE and ENGAGED lifestyle,\u00a0<\/b><\/span><\/h3>\n<ul>\n<li>\n<h3><span style=\"color: #008000\"><b>How would we know it\u2019s working?\u00a0<\/b><\/span><\/h3>\n<\/li>\n<\/ul>\n<ul>\n<li>\n<h3><span style=\"color: #008000\"><b>How would it look like in a person\u2019s life?<\/b><\/span><\/h3>\n<\/li>\n<\/ul>\n<ul>\n<li>\n<h3><span style=\"color: #008000\"><b>How would it make a difference in your experience?<\/b><\/span><\/h3>\n<\/li>\n<\/ul>\n<h2 dir=\"ltr\"><\/h2>\n<h2 dir=\"ltr\">Wrap-up (Estimated 5 minutes)<\/h2>\n<h2 dir=\"ltr\">Thank You &amp; Next Steps (Estimated 5 minutes)<\/h2>\n<\/div><\/div>\n<div class=\"su-spoiler su-spoiler-style-fancy su-spoiler-icon-plus su-spoiler-closed\" data-scroll-offset=\"0\" data-anchor-in-url=\"no\"><div class=\"su-spoiler-title\" tabindex=\"0\" role=\"button\"><span class=\"su-spoiler-icon\"><\/span>AGENDA February meeting<\/div><div class=\"su-spoiler-content su-u-clearfix su-u-trim\">\n<h2 dir=\"ltr\">Welcome (Estimated 15 minutes)<\/h2>\n<ul>\n<li dir=\"ltr\">\n<p dir=\"ltr\" role=\"presentation\"><strong>Housekeeping<\/strong><\/p>\n<\/li>\n<li dir=\"ltr\"><strong>Review of healthcare transition research<\/strong><\/li>\n<li dir=\"ltr\"><strong>We will be including breaks as needed throughout the focus group.<\/strong><\/li>\n<\/ul>\n<h2 dir=\"ltr\">Let\u2019s Get to Know Each Other (Estimated 10 minutes)<\/h2>\n<ul>\n<li dir=\"ltr\">\n<h4 dir=\"ltr\" role=\"presentation\">Introductions are welcomed, but optional.<\/h4>\n<\/li>\n<li dir=\"ltr\">\n<h4 dir=\"ltr\" role=\"presentation\">Ideas:<\/h4>\n<ul>\n<li dir=\"ltr\">\n<p dir=\"ltr\" role=\"presentation\">Please call me _______. My pronouns are _____.<\/p>\n<\/li>\n<li dir=\"ltr\">\n<p dir=\"ltr\" role=\"presentation\">The reason I am here today is _______________.<\/p>\n<\/li>\n<li dir=\"ltr\">\n<p dir=\"ltr\" role=\"presentation\">One thing that is important to me is ___________.<\/p>\n<\/li>\n<li dir=\"ltr\">\n<p dir=\"ltr\" role=\"presentation\">One thing I want people to know about me is____.<\/p>\n<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<h2 dir=\"ltr\"><b>Part 1: Healthcare Accessibility (<\/b>Estimated 15 minutes<b>)<\/b><\/h2>\n<p><b>There are many challenges with accessibility of healthcare for Autistics:\u00a0<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Sensory sensitivities<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Communication challenges between Autistics and providers<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Navigating the system and making appointments<\/span><\/li>\n<\/ul>\n<p><b>Research tells us that some things can help:<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Options for direct communications with provider: written, verbal, AAC, ASL<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Scheduling appointment online or by text<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">planning the visit in advance\u00a0<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">skipping the waiting room<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Having longer visits<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Having a support person<\/span><\/li>\n<\/ul>\n<h3><span style=\"color: #008000\"><strong>How does this compare with your experience in Vermont?<\/strong><\/span><\/h3>\n<h3><span style=\"color: #008000\"><strong>Which model(s) or aspects of the models would make healthcare more ACCESSIBLE here in Vermont?<\/strong><\/span><\/h3>\n<p>&nbsp;<\/p>\n<h2><b>Part 2: Transfer of care\u00a0<\/b><b>(<\/b>Estimated 15 minutes<b>)<\/b><\/h2>\n<p><b>Many young adults do not have a regular healthcare provider and only get care when something urgent happens. Accessing healthcare specialists for adults is even harder, especially for Autistics.\u00a0<\/b><\/p>\n<p><b>Research tells us that some things can help:<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Supporting Autistic youth in developing the skills to manage their health needs\u00a0<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Having a transition manager or care coordinator<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">A warm handoff and communication between pediatric and the new adult doctor (including adult specialists)<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Easy transfer of health records\u00a0<\/span><\/li>\n<\/ul>\n<h3><span style=\"color: #008000\"><strong>How does this compare with your experience in Vermont?<\/strong><\/span><\/h3>\n<h3><span style=\"color: #008000\"><strong>Which model(s) or aspects of the models would help in transferring care between providers here in Vermont?<\/strong><\/span><\/h3>\n<h2><b>Part 3: Specific areas of needs: Mental Health\u00a0<\/b><b>(<\/b>Estimated 15 minutes<b>)<\/b><\/h2>\n<p><strong>Many mental health needs are not being met during the time of transition to adulthood. There are many types of MENTAL HEALTH resources: social workers, counselors, therapists, psychologists, psychiatrists, coaches, mindfulness practices, religious supports, peer support\/autistic organizations, etc.<\/strong><\/p>\n<h3><span style=\"color: #008000\"><strong>What kinds of mental health supports would you like to have access to transition to?\u00a0<\/strong><\/span><\/h3>\n<h3><span style=\"color: #008000\"><strong>Which model(s) or aspects of the models would help in supporting the mental health needs of autistic youth in Vermont?\u00a0<\/strong><\/span><\/h3>\n<h3><span style=\"color: #008000\"><strong>What would help make it easier to transition to these services for adults?<\/strong><\/span><\/h3>\n<h2><b>Part 4: Specific areas of needs: Relationships and Sexual Health\u00a0<\/b><b>(<\/b>Estimated 15 minutes<b>)<\/b><\/h2>\n<p><strong>Relationships and sexual health can be uncomfortable topics. There are trainings for relationships and sexual health available for educators. Gynecologists are experts of sexual health for women. Organizations like Planned Parenthood support many people with their sexual health.<\/strong><\/p>\n<h3><span style=\"color: #008000\"><strong>What supports would you like to be available for relationships and sexual health during the healthcare transition?<\/strong><\/span><\/h3>\n<h2><b>Part 5.<\/b> <b>Adult services to support an active and engaged adult life\u00a0<\/b><b>(<\/b>Estimated 15 minutes)<\/h2>\n<p><strong>There are many types of support that can help with having an ACTIVE, ENGAGED LIFE: Programs supporting work, post-secondary education, recreation, housing programs, transportation services, etc.\u00a0<\/strong><\/p>\n<p><span style=\"color: #008000\"><strong>What kinds of lifestyle supports would you like to have access to transition to?\u00a0<\/strong><\/span><\/p>\n<p><span style=\"color: #008000\"><strong>Which model(s) or aspects of the models would help with lifestyle support needed by autistic youth in Vermont? <\/strong><\/span><\/p>\n<h2 dir=\"ltr\">Wrap-up (Estimated 5 minutes)<\/h2>\n<h2 dir=\"ltr\">Thank You &amp; Next Steps (Estimated 5 minutes)<\/h2>\n<h3 style=\"text-align: center\"><a href=\"https:\/\/docs.google.com\/document\/d\/1UD_WEapRj-wUts7-K_rtdZUblmuRZ4XsUUiXIHEloco\/edit?usp=sharing\">Detailed agenda with additional possible questions<\/a><\/h3>\n<\/div><\/div>\n<h3 style=\"text-align: center\"><\/h3>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-286","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/wp-json\/wp\/v2\/pages\/286","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/wp-json\/wp\/v2\/comments?post=286"}],"version-history":[{"count":13,"href":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/wp-json\/wp\/v2\/pages\/286\/revisions"}],"predecessor-version":[{"id":657,"href":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/wp-json\/wp\/v2\/pages\/286\/revisions\/657"}],"wp:attachment":[{"href":"https:\/\/cdci.w3.uvm.edu\/blog\/healthcare-transition\/wp-json\/wp\/v2\/media?parent=286"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}