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Participatory Research

Consequences of research without inclusion

Autistic research partners can help avoid biases and invalid assumptions in research.

Not including autistic people as research partners can have important consequences:

Biases and incorrect assumptions in the research process affect how data reflects the real word (validity).

Invalid data leads to invalid research conclusions.

These invalid research conclusions sometimes lead to harmful practices.

Some of these harmful practices are still in use today.^5,6

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This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award EACB 24096

For more information, contact the project co-leader Dr. Liliane Savard at liliane.savard@uvm.edu