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Participatory Research

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Input

Community members are research subjects. The research is ABOUT them. This is not considered CPAR.

Data is gathered through focus groups or a survey of the community. Providing study data requires limited time and resource commitments.

Input is how community partners may first hear about CPAR opportunities.

Example

For this project, some people provided feedback through surveys or through focus groups.

Screen shot of a sample survey. The text reads: Building Safe Space, Many in the Autism Community don't trust doctors and researchers. Autistic people and non-autistic parents often have different opinions. Some things are hard to talk about. Think about a group that includes autistic and non-autistic people like doctors, parents, researchers, and community members: What makes it SAFE for everyone to be heard in this kind of group? Text box for data entry. What makes it EASY to feel safe? Text box for data entry. What makes it HARD to feel safe? Text box for data entry.
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This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award EACB 24096

For more information, contact the project co-leader Dr. Liliane Savard at liliane.savard@uvm.edu 

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