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Project Summary
Training
Participatory Research
1. Why CPAR?
2. What is CPAR?
3. Research partner roles
4. How to do CPAR
Resources
Working Together
1. Team Trust and Safety
2. About autism
3. Accessible collaboration
4. Communications
Resources
Glossary
Contact
Participatory Research
1. Why CPAR?
Module 1 Introduction
Lesson 1: Hear from research partners
Hear from research partners
Hear from research partners
Lesson 2: History of autism research
Understanding the autistic experience
Example: Stimming
Consequences of research without inclusion
Example: Research on autistic meltdown and shutdowns
Lesson 3: Introduction to ableism
Knowing about ableism is important
Video example: uncovering ableist biases
Example: Uncovering ableist biases
Lesson 4: Benefits of involving community partners
Something to think about
2. What is CPAR?
Module 2 Introduction
Lesson 1: Defining CPAR
CPAR is a type of participatory research
Comparative Effectiveness Research
Lesson 2: Who supports this type of research?
Lesson 3: Different levels of engagement
Input
Consultation
Collaboration
Let’s talk about tokenism
Something to think about
3. Research partner roles
Module 3 Introduction
Lesson 1: Who is on a CPAR research team?
What is the difference between research participants and partners?
Lesson 2: Roles on the research team
There are many roles on the research team
Community partners
Contributions
Lesson 3: What research partners can do
Research partners can work at any step of the research process!
Training or skills needed
Helpful training
Something to think about
4. How to do CPAR
Module 4 Introduction
Lesson 1: Getting started
Getting started for researchers
Non-autistic researcher’s perspective
Getting started for community members
Autistic research partner’s perspective
Making connections
Lesson 2: Research questions
?
What’s in a research question?
Important problem for the community
Using PICOT to create a research question
Does an answer exist?
Is new research needed?
Lesson 3: Research standards
Research ethics
Belmont principles
Research methods
Qualitative methods
Quantitative methods
Funding agencies
Lesson 4: Safe research space
Challenges for community partners
Challenges for researchers
Tips for clear expectations
Group norms and facilitation
Confidentiality
Important considerations
Something to think about
Resources
Select learning style:
Contributions
Contributions are
recognized
when sharing research results.
Authors:
people who came up with the idea, collected and
analyzed
data
, or prepared results for sharing.
Research Credits:
given to people who shared lived experience, advised on research, or reviewed results for sharing.
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