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Project Summary
Training
Participatory Research
1. Why CPAR?
2. What is CPAR?
3. Research partner roles
4. How to do CPAR
Resources
Working Together
1. Team Trust and Safety
2. About autism
3. Accessible collaboration
4. Communications
Resources
Glossary
Contact
Working Together
1. Team trust and safety
Module 1 Introduction
Lesson 1: Guiding principles
Disclosure
Making a real-life impact
Time and effort are precious
Collaboration is worth the time and effort
Some forms of compensation
Benefits of Being a Research Partner
Lesson 2: Language considerations
Ways to talk about autism
There is no consensus
Autism and other experiences
Diversity in gender identity
Lesson 3: Knowing about ableism
A note on systemic ableism
What internalized ableism looks like
What systemic ableism looks like
Lesson 4: Respecting each other
Meeting facilitation
Inclusion and acceptance
Learning together
How to be supportive
Something to think about
2. About autism
Module 2 Introduction
Lesson 1: Autism awareness
Features of autism
Every autistic person experiences these features differently
Autism and co-occurring conditions
Autistic strengths that benefit the research process
Lesson 2: Communication
Understanding
Masking
Influence
Ways of including someone who gets physical communication supports
Our experience with communication
Lesson 3: Interests
Lesson 4: Sensory and motor differences
Some of our sensory or motor experiences
Lesson 5: Thinking patterns
Information processing
Getting things done
How we think, process information, and understand the world
Lesson 6: Emotional expression
Some of our experiences related to emotions
Summary
Something to think about
3. Accessible collaboration
Module 3 Introduction
Lesson 1: Accessibility
Accessibility is not optional
Universal design
Identify needs and preferences
Accessible collaboration
Lesson 2: Materials
Plain language
Multiple formats
Ways of sharing information
Visual information
Visual Formats
Lesson 3: Meetings
Virtual meetings
Schedule
Group size
Processing information
Lesson 4: Flexibility
Task support
Hiring support
Employment support
Something to think about
4. Communications
Module 4 Introduction
Lesson 1: Responsibility for connection
Advice to researchers
Advice to community partners
Balancing different needs
Example 1
Example 2
Self-advocacy
Lesson 2: Clear expectations
Important information to have
Including research partners’ ideas
Staying on track
Work style
Autistic communication
Lesson 3: Self-care strategies
Awareness
Trust yourself
Being honest
Communication strategies
Be brave
Something to think about
Resources
Select learning style:
Including research partners' ideas
Photo by
fauxels
Discuss the project with community partners to understand their vision and ideas.
Be ready for the ideas to change with people’s input.
Consult
with people who are experienced in engaging research partners in similar projects.
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