Pediatric to adult healthcare transition has been identified as a national and local priority. For autistic* youth, there are many challenges associated with healthcare transition. In Vermont, like in the rest of the country, transition services are rarely available. Autistic adults and families are clear that there is a high need for supports.
The UVM Autism Collaborative (UVM-AC) is a group of autistic and non-autistic research partners. We conducted this project to talk with more autistic and non-autistic community members representing different stakeholders: youth, caregivers, professionals and healthcare leaders about healthcare transition. We wanted to hear their ideas on the research needed to improve healthcare transition for autistic youth.
We also wanted to meet champions and future research partners.
Healthcare transition is complex. Our stakeholders shared with us a road map to start addressing these healthcare transition challenges.
Visit the Results page or download the Final Report to learn more.
This work was possible thanks to a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award EASCS 24099.
* For this project, we used identity-first language (autistic person) as this was the preference of the autistic members of our project team.
